Chronic Disease Self-Management Education Programs

Purpose and Background

Chronic Disease Self-Management Education (CDSME) programs provide older adults and adults with disabilities with education and tools to help them better manage chronic conditions such as diabetes, heart disease, arthritis, HIV/AIDS, and depression. Since 2003, the Administration on Aging (AoA) has supported the dissemination of CDSME programs through grants to states. Grantee organizations include state agencies, Area Agencies on Aging, nonprofits, universities, and tribes. Funds are used to develop a sustainable infrastructure to deliver proven programs in  communities.

In September 2012, AoA began its Empowering Older Adults and Adults with Disabilities through Chronic Disease Self-Management Education Programs, financed through the Affordable Care Act's Prevention and Public Health Fund (PPHF). The 2012 PPHF CDSME grants, awarded to 22 states, concluded on August 31, 2015.

In September 2015 and August 2016, AoA awarded new two-year CDSME grants to 20 grantees financed by PPHF funds.

The 2015 and 2016 PPHF CDSME cooperative agreements are designed to achieve two major goals:

  • Goal 1: Significantly increase the number of older adults and adults with disabilities in underserved areas and populations who complete evidence-based self-management education and support programs to empower them to better manage their chronic conditions.

  • Goal 2: Implement innovative funding arrangements to support evidence-based self-management programs during and beyond the grant period, while embedding the programs into an integrated, sustainable evidence-based prevention program network.

From 2015 to 2016, AoA awarded 20 two-year forward-funded cooperative agreements totaling $12.9 million.

Funding

2015 Grantees

Grantee Award Amount
Health Foundation of South Florida, Miami, FL $900,000.00
AgeOptions, Inc., Oak Park, IL $711,510.00
MAC Incorporated, Salisbury, MD $733,698.00
Mississippi State Department of Health, Jackson, MS $712,120.00
University of North Carolina at Asheville, Asheville, NC $880,782.00
Health Promotion Council of Southeastern Pennsylvania, Inc., Philadelphia, PA $897,921.00
South Dakota State University, Brookings, SD $765,140.00
Community Council of Greater Dallas, Dallas, TX $875,693.00

2016 Grantees

Grantee Award Amount
Central Maine Area Agency on Aging, ME $636,620.00
Department of Aging and Rehab Services Virginia, VA $900,000.00
New Mexico Department of Health, NM $868,176.00
New York State Office for the Aging, NY $900,000.00
Washington State Department of Social and Health Services, WA $900,000.00
Texas A&M Health Science Center, TX $895,189.00
Utah Department of Health, UT $729,161.00
Great Plains Tribal Chairmen's Health Board, SD $140,900.00
Lac Courte Oreilles Band of Lake Superior Chippewa Indians, WI $87,448.00
Lake County Tribal Health Consortium, Inc., CA $135,599.00
Sokaogon Chippewa Community, WI $135,598.00
Yellowhawk Tribal Health Center, OR $142,958.00

Current Activities

PPHF Grantee Progress as of August 2016:

  • Nearly 12,000 workshops

  • More than 133,000 participants and 98,000 completers (participants who attended four out of the six sessions)

AoA funding has supported nearly 291,000 CDSME participants since 2010 and a cumulative total of about 322,000 participants since 2006.

Nearly 60% of participants reported having more than one chronic condition. The most common conditions are:

  • hypertension (41%),

  • arthritis (37%), and

  • diabetes (32%).

The average age of a CDSME participant is 65 years old, and 46% of participants report having a disability.

With regard to race and ethnicity:

  • 31% are non-White:

    • 22% Black

    • 4% Asian

    • 2% Native American

    • 2% multi-racial

    • 1% Pacific Islander

  • 16% are Hispanic

The PPHF grantees provide the following highest-level evidence-based chronic disease self-management education and self-management support programs:

Read the 2012 PPHF CDSME Capping Report, identifying successes, innovations, outcomes, challenges, and lessons learned from the 22 grantees.

View the results of the 2015 CDSME Integrated Services Delivery System Assessment Tool, highlighting the progress of the 2012 PPHF CDSME grantees in developing integrated and sustainable delivery systems.

2015 PPHF CDSME Grantee Profiles

2016 PPHF CDSME Grantee Profiles

National CDSME Resource Center

AoA also funds the National CDSME Resource Center at the National Council on Aging’s Center for Healthy Aging. The Resource Center works collaboratively with many national, state, and local partners to achieve two overarching goals: 1) Assist the national network of CDSME partners with increasing the number of older adults and adults with disabilities who complete evidence-based CDSME programs; and 2) Strengthen and expand integrated, sustainable evidence-based prevention program networks within states/regions/tribal entities to provide CDSME programs.

The Resource Center provides leadership, guidance, and technical assistance to support its broad network of partners; manages a national database for CDSME programs; and serves as a national clearinghouse to highlight and share information and resources for CDSME programs. To access toolkits, webinar recordings, tip sheets, learning modules, and other online resources, go to https://www.ncoa.org/center-for-healthy-aging/cdsme-resource-center/.


Last modified on 04/30/2017