Paralysis Resource Center (PRC)

The Paralysis Resource Center (PRC) grant was awarded to the Christopher & Dana Reeve Foundation whose mission in part is to improve the quality of life for people living with paralysis through grants, information and advocacy. This mission aligns well with ACL’s mission and provides important new programmatic opportunities for persons with disabilities and older adults. The PRC provides comprehensive information for people living with spinal cord injury, paralysis, and mobility-related disabilities and their families. Resources include information and referral by phone and email in multiple languages including English and Spanish; a peer and family support mentoring program; a military and veterans program; multicultural outreach services; free lending library; quality of life grants; and a national website.

Project Goals

  1. A Resource Center with dedicated information specialists; a resource-rich website containing customized materials including fact sheets, Paralysis Resource Guide, and educational and health promotion videos and wallet cards; and a national clearinghouse library of materials available at no charge to the public;

  2. A comprehensive Outreach Program dedicated to increasing the quality of life of individuals from underserved and minority communities including the African American, Native American, Hispanic, Asian American, LGBT, and rural communities;

  3. A National Peer and Family Support Program that provides certified trained peer mentors to assist individuals living with paralysis and related mobility impairments, their family members, and caregivers;

  4. A national program that successfully translates activity-based therapies including treadmill therapy from academic clinical centers to community fitness and wellness centers to improve the physical health and functional ability of individuals with spinal cord injuries and other paralyzing conditions;

  5. A national Quality of Life program that awards grants to paralysis-focused nonprofit, community-based organizations so that they may implement programs aimed at improving the health, wellness, and independence of people living with paralysis and other physical disabilities, including a new innovative High Impact Assistive Technology Grant Program making grants to state programs funded through the State Assistive Technology Act Program;

  6. National surveillance that increases understanding of the true impact and burden of paralysis by disease category, injury, and quality of life indicators that are used to shape and revise PRC programs and services, as well as provide accurate and timely information to other disability organizations, including federal agencies, and;

  7. A public policy program that provides outreach and education to elevate the voices of people living with paralysis and their families through education and outreach efforts in the areas of community-based long-term services and supports, enhanced family caregiver support, health insurance, and access to rehabilitation technologies.

Organization

Christopher & Dana Reeve Foundation
636 Morris Turnpike, Suite 3A
Short Hills, NJ 07078
www.christopherreeve.org/site/c.mtKZKgMWKwG/b.4451921/k.5E8C/Paralysis_Resource_Center.htm

Grant Number

90PR3002

Contact

Margaret Goldberg, Vice President, Policy and Programs
Phone: (973) 379-2690 Ext 7206 or (800) 225-0292
Email: mgoldberg@christopherreeve.org

Award Amount

$7,495,783

Project Officer

Elizabeth Leef
Phone: (202) 475-2482

Email: Elizabeth.leef@acl.hhs.gov


Last modified on 04/30/2017