It is estimated that between seven and eight million Americans of all ages, or 3% of the general population, experience intellectual disabilities. Nearly one in ten families in the U.S. are directly affected by a person with intellectual disabilities at some point in their lifetimes.
In 1966, President Lyndon B. Johnson established The President’s Committee for People with Intellectual Disabilities (PCPID), formerly The President's Committee on Mental Retardation, to ensure the right of a “decent, dignified place in society” for people with intellectual disabilities. Since that time, PCPID has served as a federal advisor to the President and the Secretary of Health and Human Services on matters relating to persons with intellectual disabilities.
PCPID promotes policies and initiatives that support independence and lifelong community inclusion. ACL provides oversight and support for PCPID.
As an advisory committee, PCPID does not receive an appropriation from Congress to administer federal funds. Thus, it does not administer grants nor does it provide financial or technical assistance to individuals, groups, agencies, or organizations.
Mission
PCPID aims to provide advice and assistance to the President of the U.S. and the Secretary of Health and Human Services on a broad range of topics that impact people with intellectual disabilities as well as the field of intellectual disabilities. The foundation of this mission is a goal to improve the quality of life experienced by people with intellectual disabilities by upholding their full citizenship rights, independence, self-determination, and lifelong participation in their communities.
Membership and Activities
The PCPID has 20 citizen members and 13 ex officio (federal government) members. Citizen members are appointed by the President and serve for a maximum of two years. A variety of individuals who reflect the diversity of America are appointed as citizen members, including people with intellectual disabilities and their family members, researchers, service providers and other professionals, community and business representatives, and systems advocates.
The 13 government members include the secretaries of the Departments of Health and Human Services, Education, Labor, Housing and Urban Development, Commerce, Transportation, the Interior, and Homeland Security; the U.S. Attorney General; the President and CEO of the Corporation for National and Community Service; the Chairs of the Equal Employment Opportunity Commission and National Council on Disability; and the Commissioner of the Social Security Administration. PCPID is also supported by a team of federal employees.
Formal meetings typically are held at least twice per fiscal year, unless there are significant citizen member vacancies.
- Citizen Members
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There is no member information to display at this time.
- Ex Officio Members
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- Attorney General of the US Department of Justice
- Secretary of the US Department of the Interior
- Secretary of the US Department of Commerce
- Secretary of the US Department of Labor
- Secretary of the US Department of Health and Human Services
- Secretary of the US Department of Housing and Urban Development
- Secretary of the U.S. Department of Transportation
- Secretary of the U.S. Department of Education
- Secretary of the US Department of Homeland Security
- Chief Executive Officer, Corporation for National and Community Service
- Commissioner of the U.S. Social Security Administration
- Chair of the Equal Employment Opportunity Commission
- Chair, National Council on Disability
- PCPID Reports
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- 2024—Advancing Independence and Community Integration for All: Supporting Individuals with Intellectual Disabilities Through High-Quality Home and Community-Based Services
- 2017—America’s Direct Support Workforce Crisis: Effects on People with Intellectual Disabilities, Families, Communities and the U.S. Economy
- 2016—Strengthening an Inclusive Pathway for People with Intellectual Disabilities and Their Families
- 2015—Leveling the Playing Field: Improving Technology Access and Design for People with Intellectual Disabilities (PDF, 979KB)
- 2012—Managed Long-Term Services and Supports
- 2011—People with Intellectual Disabilities: Critical Supports that Promote Independence, Full and Lifelong Community Inclusion
- 2009—Dignity Through Employment
- 2008—Report to the President: The Promise of Research and Prevention
- 2007—Report to the President: Holding Truths To Be Self-Evident
- 2006—Keeping the Charge: Personal and Economic Freedom for People with Intellectual Disabilities
- 2005—Keeping the Charge: Accessibility to Dental Care for People with Intellectual Disabilities
- Reports to the President, 1967–2004
- PCPID Meeting Materials (including Minutes)
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- PCPID Meeting: September 26-27, 2024
- PCPID Meeting: March 21, 2024
- PCPID Meeting: May 1, 2023
- PCPID Meeting: July 28, 2022
Previous Meeting Minutes:
- PCPID Meeting: March 21-22, 2019 (Word)
- PCPID Meeting: March 4, 2019 (Word) (PDF)
- PCPID Meeting (Call): December 12, 2018 (PDF)
- PCPID Meeting: November 8-9, 2018 (PDF)
- PCPID Meeting: March 23-24, 2017
- PCPID Meeting: November 30 - December 1, 2016
- PCPID Meeting: August 22, 2016
- PCPID Meeting: February 22-23, 2016 (PDF, 259KB)
- PCPID Meeting: November 9-10, 2015
- PCPID Meeting: August 3-4, 2015
- PCPID Meeting: May 11, 2015
- PCPID Meeting: April 7, 2015
- PCPID Meeting: February 19-20, 2015
- PCPID Meeting: September 3-5, 2014
- PCPID Meeting: August 9, 2012
- PCPID Meeting: February 1, 2012
- PCPID Meeting: November 14, 2011
- PCPID Meeting: September 26-27, 2011
- PCPID Meeting: August 16, 2011
- PCPID Meeting: July 19, 2011
- PCPID Meeting: June 16-17, 2011
- PCPID Meeting: November 19-20, 2008
- PCPID Meeting: September 9-10, 2008
- PCPID Meeting: June 25-27, 2008
- PCPID Meeting: April 24-25, 2008
- PCPID Meeting: February 15, 2008
- PCPID Meeting: November 15, 2007
- PCPID Meeting: September 6-7, 2007
- PCPID Meeting: May 14-15, 2007
- PCPID Meeting: February 15-16, 2007